Date TBA The ethical implications and attitudes towards dementia research |
Organisateurs:
- Gysels Marjolein, University of Amsterdam, Dr, Senior researcher
The aim of the project is to conduct 1) a systematic review of the literature on stakeholders’ attitudes towards involvement in dementia research, and 2) a systematic review on the ethical issues associated with research on dementia.
1. The paper focusing on the empirical evidence regarding attitudes towards research has the following objectives:
• Which stakeholders’ views regarding involvement in research are represented in the evidence and what are these?
• Are patients and other stakeholders willing to participate in research on dementia?
• How is participation in dementia research experienced?
• What are the methodological obstacles and facilitating factors to participation in dementia research?
• What are best practices to involve patients in research?
2. The paper which will focus on the main ethical issues in the debates on participation in dementia research has the following objectives:
• To identify the central ethical issues and arguments characterising research on dementia.
• To describe and appraise the origin and characteristics of the primary studies.
• To assess the suitability of the evidence to guide research governance in dementia research.