Forgot password?

The Fondation Brocher is an essential player in this vital thinking process: one which will help make us aware of the real challenges in using our resources for maximum impact on the health of the people of the world.

 

 

Professor Daniel Wikler, Harvard University

Donations

The Brocher Foundation is a Swiss non-profit private foundation  recognized of public interest. Your donations are tax deductible according to the regulations in force.

Back

Date TBA

The ethical implications and attitudes towards dementia research

Organizers:

The aim of the project is to conduct 1) a systematic review of the literature on stakeholders’ attitudes towards involvement in dementia research, and 2) a systematic review on the ethical issues associated with research on dementia. 

1. The paper focusing on the empirical evidence regarding attitudes towards research has the following objectives:
•    Which stakeholders’ views regarding involvement in research are represented in the evidence and what are these?
•    Are patients and other stakeholders willing to participate in research on dementia?
•    How is participation in dementia research experienced?
•    What are the methodological obstacles and facilitating factors to participation in dementia research? 
•    What are best practices to involve patients in research? 

2. The paper which will focus on the main ethical issues in the debates on participation in dementia research has the following objectives:
•    To identify the central ethical issues and arguments characterising research on dementia.
•    To describe and appraise the origin and characteristics of the primary studies.
•    To assess the suitability of the evidence to guide research governance in dementia research.