Personal perceptions of the ethical implications of genetics for the self and family: views from Deaf people
Anna Middleton is an Ethics Researcher and Registered Genetic Counsellor at the Wellcome Trust Sanger Institute, Cambridge, UK. She is also a Research Associate at Ethox, University of Oxford http://www.ethox.org.uk/people/ethox-associates-1/anna-middleton. She was awarded her PhD in 2000 in Genetics and Psychology from the University of Leeds.
Anna is currently working on a 5 year project at the Wellcome Trust Sanger Institute to explore the ethical implications of various issues relating to whole genome research; she has designed a quantitative and qualitative research project to gather attitudes towards the sharing of Incidental Findings discovered through whole genome analysis. She is the only social scientist working amongst hundreds of genomic researchers and is specifically attached to the DDD (Deciphering Developmental Disorders) project, http://www.ddduk.org. Anna’s has had two parallel careers, the first as a genetic counsellor working clinically in the NHS and the second as a social scientist exploring the ethical implications of genetic technology. Prior to her current position she was Chief and Principal Investigator on a UK-wide project at Cardiff University exploring the attitudes towards genetic testing and genetic counseling services from the d/Deaf community http://medicine.cf.ac.uk/en/person/dr-anna-middleton/research/. She is on the editorial board of the Journal of Genetic Counseling.