The new self-advocacy activism in psychiatry: Toward a scientific turn

Neurodiversity and Mad studies are both activist movements that have
targeted psychiatric conceptualizations, categorizations, institutions, and
practices: they aim at integrating the point of view of people with lived
experience. Neurodiversity activists have developed a framework in which

diversity, including neurobiological variations, is a fundamental character-
istic of human nature rather than a sign of pathology. It has led to the

creation of “neurodiversity studies” in the academic world. Mad Studies
scholars have argued for an alternative conceptualization of Madness and
distress built in social/existential/spiritual/phenomenological framework(s)
rather than in biological dysfunctions. While the Neurodiversity activism
and Mad Studies1 might diverge on some claims (mainly on the idea of
neurobiological variations put forward by the neurodiversity movement),
they are both paradigmatic examples of a new activist turn: the one in which stakeholders, by developing critical approaches on psychiatry, have

a standpoint through which they can contribute to the development of
sciences of mental health. The first activist movements about mental health
and psychiatric categories were fundamentally against the methods and
theories of psychiatry. The new activism exercises both an epistemic and
a political influence on psychiatry or tries to develop alternative scientific
frameworks to pursue research outside of psychiatry.

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‘Good’ and ‘bad’ stem cell research: How India's scientists view providers of unproven stem cell treatments

In this article, I explore the opinions of India's stem cell scientists on unproven and unregulated stem cell
treatment provision in the country's private health sector. Drawing on interviews, I describe three themes, namely
ethical responsibility; exaggerated timelines for stem cell cures; and the scientific method to demonstrate how
scientists make distinctions between themselves as producers of ‘good stem cell research’ and treatment providers

who practice ‘bad stem cell research’. Excerpts from my interviews with treatment providers interrupt the dis-
cussions in the themes, offering insights on conflicting views of medical professionals. I analyse the themes using

the conceptual framework of ‘boundary-work’ that Gieryn developed in order to examine how scientists respond
to challenges to their intellectual authority in particular scientific fields. A policy environment that promotes
product development posed a threat to the integrity of basic science according to stem cell scientists who

simultaneously reflected on solutions to advancing India's stem cell field by promoting the role of clinician-
researchers as mediators between medicine and science. According to Gieryn, depending on what is at stake

such as funding and public support, scientists redraw boundaries in order to secure their position in relation to

competing groups. In this instance, I argue that the expectations of translational research, demanded that sci-
entists examine the boundaries drawn between themselves and clinicians with the purpose of also including the

latter in stem cell science rather than for excluding contenders, as Gieryn's notion of boundary-work suggested.

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Depression trial results: A cross-sectional study of ClinicalTrials.gov

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L'Humanitaire s'exhibe (1867-2016) | The Humanitarian Exhibition (1867-2016)

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Conviction The making und unmaking of the Violent Brain

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RNA The Epicenter of Genetic Information

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Reimagining psychiatric epidemiology in a global frame toward a social and conceptual history

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Gezonde Stad

Uitsluiting en ontmoeting in de publieke ruimte

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Precision Medicine and Distributive Justice

Wicked Problems for Democratic Deliberation

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Response to Open Peer Commentaries on Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.

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Telepalliative care during the pandemic: Lessons for the future

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Explainability as fig leaf? An exploration of experts’ ethical expectations towards machine learning in psychiatry

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“Not Storing the Samples It’s Certainly Not a Good Service for Patients”: Constructing the Biobank as a Health Place

Biobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynamics between healthcare and biomedical research. The ethnography intended to follow the path of biological samples from the hospital, where they were collected, to the biobank in a research institute, where they were stored. Findings suggest that although the nature of the biobank’s technical work seemed to inscribe it as a research-oriented setting, the biobank’s daily work was performed through symbolic action in the logic of care. Biobank staff constantly recalled the human nature of the samples, and they built complex illness narratives of each sample, promoting a connection with the absent donor. These practices were crucial to constructing the biobank as a health place, one that was designed to be life-saving in the near future.

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Learning from My Daughter: The Value and Care of Disabled Minds

Eva Feder Kittay’s most recent book is both the culmination of her decades of intervention into the ableist discourses of mainstream moral philosophy and a
contribution to the feminist philosophy of disability. This first volume of a twopart project evidences significant advancement in Kittay’s thinking on both fronts,
including a clarified normative basis for an ethics of care and an account of what
makes a life valuable in dialogue with disability theorists and advocates. Although I
will note lingering concerns about Kittay’s approach to the normativity of care and its
consequences for theorizing disability, the following two sections will emphasize the
strides Kittay has made in developing an ethics of care that can advance the project
of disability justice.

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Medicalization, Contributory Injustice, and Mad Studies

In recent years, the topic of epistemic injustices (EI) in medicine has
received increasing attention (e.g., Carel and Kidd 2014; Buchman,
Ho, and Goldberg 2017; Crichton et al. 2017; Freeman and
Stewart 2018). EI are the harms suffered by individuals when they are
wronged as epistemic agents (i.e., in their capacity to acquire, share, or
create knowledge), because of negative identity stereotypes (e.g., sexism,
racism, neuronormativity, ableism, etc.), or social marginalization (e.g.,
lack of inclusivity in structures of power). Among this body of work, it
has been convincingly shown that EI can happen in many ways in health
care encounters and settings, and at different stages of medical research.
One recent and promising line of analysis has concerned the process
of medicalization and how it can create EI (Wardrope 2014; Gosselin

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Value choices in European COVID-19 vaccination schedules: how vaccination prioritization differs from other forms of priority setting

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Half a century of bioethics and philosophy of medicine: A topic-modeling study

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Covid-19: Twin Method for Verifying Real-World Effectiveness Under Everyday Conditions

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Uncertainty in Medicine

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Saving sick Britain

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