18 - 20 mai 2020
ELSI in epigenetics: Indigenous, national and global perspectives
- Kendal Evie, Deakin University
- Kelaher Margaret
- Baynam Gareth
- Ferdinand Angeline
Topics: Indigenous epigenetics, precision medicine, genetic privacy, big data
The proposed symposium will cover some general bioethical issues surrounding epigenetics research, including informed consent in the context of uncertainty, the ethics of genetic biobanking, privacy protection for genetic and epigenetic “big data,” and public education and engagement in the area of genetic and ancestry testing. However, the main focus will be on the ethical, legal and social implications of epigenetics research as it affects Indigenous populations. Engaging Indigenous stakeholders in policy development and training geneticists and other health professionals in culturally aware practices, is essential for the benefits of this area of medical research to be shared equitably across populations.
This symposium will bring together bioethicists, clinicians, epidemiologists, policymakers, genetic counsellors, health lawyers, geneticists, medical educators and research students. Most importantly, invited speakers include representatives of Indigenous and other minority communities as primary stakeholders.