Researcher (VU), Head Creative Care Lab (WAAG) - VU University Amsterdam, Waag Society
Improving the social impact of new eHealth and telemedicine-applications: towards a resilient healthcare system
The research will take on a mixed methods approach, combining both quantitative and qualitative methods such as: stakeholder consultation, analysis of (archival) data and interviews. Since implementing eHealth and telemedicine takes place within an (social) environment in which different actors/stakeholders are involved, theories on network governance and the interrelatedness of the different actors will be used to interpret the results. Using concepts from people and person-centered care, analytical tools from affordances research, empirical material will be written during the residency at Brocher Foundation.
The objectives of the proposed study are to:
- Research how to develop eHealth- and telemedicine-applications in a person- or people-centered manner, that incorporates the perspectives and sense making of end-users (patients and healthcare professionals);
- Base the insights of research on the case study of the Artificial Pancreas that meets the criteria of a telemedicine-system to support the partnership between patient and healthcare professionals in chronic disease management in a person-centered way;
- Develop general guidelines for chronic disease management through eHealth- and telemedicine-enabled person-centered care;
- Validate these guidelines with experts/stakeholders, thus contributing to the development of guidelines for user-friendly development of eHealth- and telemedicine-applications.
- Give input for the working paper of the European Health Futures Forum on how to implement eHealth-solutions by engaging the end-users in a meaningful manner.
THE SOCIAL IMPACT OF IMPLEMENTING TELEMEDICINE WITHIN PERSON-CENTRED CARE ON EMPOWERMENT AND SELF-MANAGEMENT OF PATIENTS WITH CHRONIC DISEASESA multidisciplinary reflexion on health issues of the 21st century could lead to innovative solutions. One of the challenges to overcome in the coming decades is how to support the increasing number of chronic patients in a pressured healthcare ecology. Patients in chronic disease management are expected to increasingly use Information and Communication Technology (ICT) for self-care during their treatment process and for co-decision with health care providers. The application of these types of information and communication technology is looked upon as one of the ways to get both patients and healthcare providers more involved in their treatment and to increase the health related quality of care, according to the WHO. Connecting patients and health care professionals would not only improve the technical system of communicating but also triggers social innovations of care models in which new ways of interacting and deciding improves the diagnostics and treatment. So far, a general overview of the extent and nature of published research involving this subset of ICT-interventions is lacking. The objective is to contribute with a scoping review to identify research gaps in the existing literature and to draw conclusions from existing literature regarding the overall state of research activities in this field. And also take into account if and how these solutions fits into the national health policy.
Sabine E. Wildevuur has a long experience in the multidisciplinairy field of science, technology and the arts, with a focus on social innovation in the field of healthcare through technology. She is a researcher at the VU University in Amsterdam. Wildevuur is head of the Creative Care Lab at Waag Society, Institute of Art, Science and Technology in Amsterdam were innovative solutions are developed for health care purposes, with and for users (including all stakeholders in healthcare such as patients, healthcare professionals, healthcare policy makers, health insurers and healthcare orgaizations etc). As a resident at the Brocher Foundation in 2015 she developed a theroretical framework how information and communication technology supports both patients and healthcare professionals in a person-centered care approach of chronic disease management. In 2017 her focus is on 'Improving the impact of new eHealth and telemedicine-applications: towards a resilient healthcare system'. A case study on the Artificial Pancreas is part of her research during her stay at Brocher from febr-april 2017.
Wildevuur studied medicine and communication science at the University of Amsterdam and was – amongst others - Head of the Internet Unit of the United Nations Environment Programme in Nairobi (Kenya), she worked several years as medical journalist for the Royal Dutch Medical Association and wrote hundreds of articles, she was involved in the Quality of Health Care Information Online (Health on the Net Foundation). At the University of Oxford she studied the relationship between Medicine and the Internet. She co-authored Connect: Design for an Empathic Society (2013, BIS Publishers), a book on designing for an ageing society, and is the author of Invisible Vision: Could Science Learn from the Arts? (2009, BSL). In 2014 Wildevuur was curator of the exhibition Designing Health (2014) at the Designhuis in Eindhoven (NL) showing how technology, innovation and design have influenced health care throughout history and what they are capable of contributing to it now and in the future.
- Wildevuur, SE., Simonse, L., (2015). "Information and Communication Technology–Enabled Person-Centered Care for the “Big Five” Chronic Conditions: Scoping Review." Journal of Medical Internet Research 17(3): e77.